Life Planning Checklist for a Child with Special Needs
by Steve Morris
Imagine for a few moments that you are no longer able to care for your child due to your own illness or death. Will your child be able to maintain the same quality of life that he or she now enjoys?
Some of the key questions that should be addressed in order to answer this broader question are as follows:
___Yes ___No 1. Do you have a written plan (“Letter of Intent”) to let others know what you want in the future for your child?
___Yes ___No 2. Have you asked someone to serve as a guardian/advocate for your child when you are unable to?
___Yes ___No 3. Do you understand all the government benefit programs that are available to your child for health care and supervision?
___Yes ___No 4. Do you have current wills that exclude your multiply disabled child by name? (IF NOT, then any funds received may have to be “spent down” in order to qualify for various government benefits).
___Yes___No 5. Do you have a “Special Needs Trust” to receive and manage all current and future resources? (Only this kind of trust with very specific provisions will protect and preserve your child’s assets).
___Yes___No 6. If you have a “Special Needs Trust,” is it a “living” trust?
___Yes___No 7. Have you earmarked a specific fund or life insurance to ensure the quality of life you want for your child?
___Yes___No 8. Have you met with friends, relatives, and care providers to let them know about your plans? (This is necessary to prevent a relative from inadvertently giving money directly to your child).
___Yes___No 9. If you have a “Special Needs Trust,” have you structured your plans so that NO retirement funds are payable to your trust?
___Yes ___ No 10. If you have done some planning, have you worked with an individual or organization that specializes in financial planning for children with special needs?
___Yes ___No 11. Have you completed a basic financial and trust fund analysis to determine adequate funding requirements for a “Special Needs Trust”?
___Yes___No 12. Do you sincerely believe that you have explored all of your options, and therefore have done everything possible to ensure quality of life for your special needs child?
If you cannot answer “yes” to all the above questions, then you may have some serious deficiencies in your financial and estate plan as it applies to your child with special needs. We urge you to create a financial plan for your child’s future and receive professional legal guidance.
Caveats and Disclaimers
The information provided here is not intended to be exhaustive on the subject of special needs planning. Entire books have been written on this subject, so the objective here is more limited in scope. It is our intention to provide sufficient information so that parents have a general understanding of the main issues involved and then know what steps need to be taken to achieve their goals for their child by creating a Comprehensive Life Plan. Where legal terms and devices are discussed such as special needs trusts, wills, guardianship, etc., it should be understood that this is not intended as specific legal advice, and accordingly, each family is always advised to obtain appropriate legal counsel when implementing these elements of a Comprehensive Life Plan for their child with special needs.