ParentConnect: Connecting Matters

When facing challenges, stressful life changes, and feelings of isolation, ParentConnect can be a space to support you. Support groups offer space to share concerns and successes while providing the opportunity to learn, grow, and connect with others going through similar situations. Becoming a parent has challenges that other parents can relate to, but what … Continued

Linking Arms: Support Groups for Parents of Children Who Are Blind or Visually Impaired

We’re thankful you frequent the APH FamilyConnect blog to gather resources and instructional ideas, and to reflect on how to empower your child who is blind or visually impaired to set their expectations high and reach their goals. We understand, however, that while the APH FamilyConnect blog is a robust resource, it has a limitation—it … Continued

Are You Planning to Go to College and Are You Visually Impaired?

Here is information about one of the Lighthouse Guild’s telephone support groups. With our back-to-school focus, this support group is particularly relevant as its focus is helping visually impaired high school students with their transition into college. These telesupport groups are an excellent way to share and learn from each other. In September 2016, we … Continued

Launching Summer: Safety Tips for Children with Glaucoma or Cataracts

On the 4th of July, we in the United States celebrated Independence Day! This is the holiday that traditionally launches summer fun, summer sports, and family vacations. Under the warmth and brilliance of the summer sun, children enthusiastically participate in various sports such as swimming, softball, volley ball, soccer, running track and field events, horseback … Continued

Children with Autism and Blindness: Misunderstood, Mislabeled, Misdiagnosed

We are happy to bring you information about another telephone support group available to you. By Dr. Susan Barron, PhD and Facilitator for the Lighthouse Guild Tele-support group for Parents of Children with Autism with Blindness. Misunderstood, mislabeled, misdiagnosed. How many times since the birth of your child has this been the judgment of others … Continued

Telephone Support Group for Cortical Visual Impairment in Children

Editor’s note: We are pleased to welcome Judith Millman, LCSW, CVI telesupport group facilitator as a guest blogger today! CVI—cortical vision impairment (often called cerebral vision impairment in Europe and the British Isles) is very much in the news these days. It is the predominant cause of vision loss in children in the US and … Continued

Telephone Support Group for Hermansky-Pudlak Syndrome

Today we are featuring another telephone support group provided by the Lighthouse Guild’s NAPVI program. My name is Lilly Jackanin. I am the Group Facilitator for a Parent Tele-Support Group for parents of children afflicted with a condition known as Hermansky-Pudlak Syndrome. I would like to share information about our group that has been established … Continued