Families are the experts in knowing their child, which should positively impact the decisions made for a child who is deafblind. Children who are deafblind have specific needs and considerations that are âcompoundingly complex.â Families with a child who is deafblind will go through many stages of emotions and have different needs as they support … Continued
Our mission as the APH FamilyConnect Parent Advisory Board is to make a difference by empowering families with love, compassion, wisdom, and authenticity. â APH FamilyConnect Parent Advisory Board In October, APH FamilyConnect established the first-ever Parent Advisory Board. This group represents nine different states, various diagnoses, ages of children, many life experiences, and the … Continued
Editorâs note: George Stern, a college student and brilliant wordsmith who is deafblind, shares the lasting impact of contributing to his family as a child. 1: Through the Window, Softly So, what would’ve happened was: my mum, Ms. Norma, or Ms. Marie, or some other Ms. in our constellation of neighbors would’ve locked herself … Continued
Editorâs note: Originally published in TX SenseAbilities in the spring of 2022, LaQuesa Wright reflects on parenting her young adult daughter who has low vision. A Motherâs Reflections on Parenting a Child with a Visual Impairment My name is LaQuesa Wright. I am a mother of three. Demetria Ober is my 22-year-old daughter who was … Continued
Editorâs note: Meredith Howell reflects on learning that her daughter, Lola, has low vision and multiple disabilities. She looks back at the value of early intervention services and shares that she is now the regional director of Visually Impaired Preschool Services (VIPS) Indiana. Early Intervention with Lola: A Motherâs Perspective When I was told my … Continued
When Brian and Danielle Ford learned their son, Benjamin, had albinism, they didnât quite know where to begin. Brian shared his experience with APH FamilyConnect, writing about the diagnosis and the pursuit of getting Benjamin all the resources he needed. One of those resources was Melisa Matthews, a teacher of the visually impaired (TVI) who … Continued
Editorâs note: Santa gives permission to children who are blind or low vision to touch their “Elf on the Shelf.” We hope you utilize this updated post from parent Holly Bonner of of Blind Motherhood to make the holidays meaningful and accessible for your child! If You Are Blind or Low Vision, You Can Touch The Elf … Continued
Editorâs note: When Aimie Strachan was told her daughter needed to wear an eye patch for thirty minutes per day, she began searching for a book to explain the process to her daughter. When she couldnât find a book, she decided to write it herself. Aime Strachan shares her story. Author of âMatildaâs Eye Patchâ … Continued
Editorâs note:TeenTober⢠is a new, nationwide celebration hosted by libraries every October and aims to celebrate teens, promote year-round teen services and the innovative ways teen services helps teens learn new skills, and fuel their passions in and outside the library. Today we look at inspiring your teen who is blind or low vision to … Continued
Editorâs note: Guide Dogs for the Blind (GDB) introduces us to Megan Borella who first became involved with GDB when she was paired with a K9 Buddy in 2004. GDBâs K9 Buddy Program matches specially selected dogs to become wonderful pets and buddies to people who are blind or low vision, including children and their … Continued