This past week I enthusiastically attended American Foundation for the Blind’s leadership conference just outside of Washington, DC. Since returning home to Delaware, I have been reflecting on which message or session was the most personally impactful of the event; I choose the words of Linda Hagood, Speech Language Pathologist of Washington State School for … Continued
This past week I enthusiastically attended American Foundation for the Blind’s leadership conference just outside of Washington, DC. Since returning home to Delaware, I have been reflecting on which message or session was the most personally impactful of the event; I choose the words of Linda Hagood, Speech Language Pathologist of Washington State School for … Continued
You already know, blindness and visual impairments are low incidence disabilities. Most likely, you, parents and family members of babies, children, and teens with vision loss, are undertaking the parenting journey alongside few other (or no other) parents of children with vision loss. As such, I want to make you aware of one avenue to … Continued
You are told your child may have a visual impairment; your world halts. You are left with questions and an emotional roller-coaster. You want to know: A description of the possible eye condition How it is diagnosed If there are treatments How it affects one’s eyesight How one functions with this eye condition Resources for … Continued
You are told your child may have a visual impairment; your world halts. You are left with questions and an emotional roller-coaster. You want to know: A description of the possible eye condition How it is diagnosed If there are treatments How it affects one’s eyesight How one functions with this eye condition Resources for … Continued
If you’re part of the FamilyConnect community, you’ve undoubtedly seen some of the stories we’ve shared about families of children with vision loss. Chances are, you’ve been inspired. At the very least, you felt less alone knowing that others face the same challenges you do. And hopefully, you also learned about resources and ideas that … Continued
This week, we’re taking social media by storm. FamilyConnect, WonderBaby, and you will shine the light on Cerebral Visual Impairment (CVI); we’ll draw attention to what it is, discuss misconceptions, offer resources, provide encouragement to fellow parents, and share our children’s stories. Here’s how it works: Impart your knowledge, experience, and/or child’s picture pertaining to … Continued
We are pleased to introduce you to another Tele-Support Group and encourage you to participate as it is a great way to meet others to provide both support and information. By Sheri Stanger Time passes so quickly. One moment you’re holding your newborn baby – receiving a diagnosis that changes your world. You’re incredibly busy … Continued
Oh, dads! Do you know how treasured you are? I hope you do, but something tells me you are in the dark. I think about my entire childhood in hopes of capturing my fondest memory, and do you know what it is? None other than my dad reading to me before bedtime. He read the … Continued
Today we are featuring another telephone support group provided by the Lighthouse Guild’s NAPVI program. My name is Lilly Jackanin. I am the Group Facilitator for a Parent Tele-Support Group for parents of children afflicted with a condition known as Hermansky-Pudlak Syndrome. I would like to share information about our group that has been established … Continued