ABCNews recently published "Seeing Hope: FDA Panel Considers Gene Therapy for Blindness" intending to excite readers with the story of three siblings whose vision, impaired from Leber Congenital Amaurosis, improved remarkably after undergoing gene therapy. The author writes of the outcomes of the majority of individuals who have undergone the same gene therapy as the … Continued
Parents, I know you are as impressed with the Paralympic athletes as I am! Absolutely remarkable displays of power, speed, strength, agility, resolve, and grit: unequivocal athleticism. I watched them, just as I watched the Olympic athletes, and felt a surge of adrenaline…like I needed to pick up a set of boxing gloves and release … Continued
With so much going on around the world and in the USA it is important to stop and recognize the good and important work that different groups are doing. The United Nations established this past Monday, June 13th, as International Albinism Awareness Day. People around the world with albinism face tremendous cultural stigma and in … Continued
October is National Disability Employment Awareness Month and we plan to give you information throughout the month on employment issues. The path to employment begins at home as well as in school and that destination may now seem far away. The promotion of skills and independence are criticalfactors in this process and begin at an … Continued
Editor’s note; we bring you more resources for the topic of the transition into UEB. By Sheryl Bass, The Hadley School for the Blind An exciting new introductory braille instructional course has just become available through the Family Education Program at The Hadley School for the Blind entitled Introduction to Braille, UEB Edition. The Hadley … Continued
Editor’s Note: Braille is important to everyone who is blind as it provides tactile access to the written word. Holly and Kathryn want you to be aware of the upcoming changes to the braille code, and also assist them by participating in a discussion of families learning braille through online courses. You may have heard … Continued
As Hispanic heritage month approaches, I think it is important to recognize the values and ethnic background and contributions that Latinos make to American society. First, Hispanics or Latinos are a multi-racial group. We are black, white, mestizos, as well as European-descended. So, Latin Americans are multi-racial. In my opinion there are several types of … Continued
We are kicking off the summer season with a roundup of items to help you make the most of activities, events, and just plain old ideas that can be fun. We are excited to be co-hosting a Summer Blog Party with WonderBaby. Bloggers, please join in by writing about your summer plans and sending us … Continued
Dear Families, Join us at the NAPVI National Family Conference and make a vacation around the conference program. Chicago is beautiful and there is so much for families to do. The conference hotel is in the Little Italy and Greek Town neighborhood with over 50 restaurants and bars in walking distance! It’s also central to … Continued
We are organizing a phenomenal conference program for you and your family. The conference welcomes parents of children of all ages with visual impairments, blindness, and additional disabilities including siblings and extended family and friends. Early registration is now open! The conference location is at The Chicago Lighthouse for People Who Are Blind or Visually … Continued