Early Intervention with Lola: A Mother’s Perspective

Editor’s note: Meredith Howell reflects on learning that her daughter, Lola, has low vision and multiple disabilities. She looks back at the value of early intervention services and shares that she is now the regional director of Visually Impaired Preschool Services (VIPS) Indiana. Early Intervention with Lola: A Mother’s Perspective When I was told my … Continued

Behind the Scenes: Mom Creates CVI-Friendly YouTube Videos

Editor’s note: Alissa DeSousa shares memories of her son receiving multiple medical diagnoses, both in utero and in early childhood, including cerebral/ cortical visual impairment (CVI). She also shares how she recognized a need for CVI-friendly videos and proceeded to meet the need. Behind the Scenes: Mom Creates CVI-Friendly YouTube Videos When my pregnancy was … Continued

Resources on Cortical Vision Impairment (CVI) in Children

Parents and family members of children with cerebral visual impairment, a brain-based visual processing disorder, are far from alone. According to the Boston Children’s Hospital, cerebral/ cortical visual impairment (CVI) is the most common cause of permanent vision loss in children.Despite its prevalence, it isn’t widely understood. Advocating for Your Child Because CVI research is … Continued

Resources on Cortical Vision Impairment (CVI) in Children

Parents and family members of children with cortical visual impairment, or a brain-based visual processing disorder, you are far from alone. According to the Boston Children’s Hospital, cortical visual impairment (CVI) is the most common cause of permanent vision loss in children. Yet as common as CVI is, its educational implications are often grossly misunderstood. … Continued

Should My Child with Low Vision Be Receiving Vision-Related Services?

It’s the middle of the school year and your child with low vision (who supposedly doesn’t need a Teacher of Students with Visual Impairments) is academically struggling. While your child could be any age, I wouldn’t be surprised if you have a grade schooler and you’re seeing the result of standard print size in text … Continued

Sharing Ideas and Questions About Cortical Visual Impairment

Hello, my name is Christine Roman. I am so honored that AFB and NAPVI asked me to contribute to the FamilyConnect site. It is my pleasure to have the opportunity to share ideas with those of you who have a special interest in cortical visual impairment. My experiences as a teacher of children with visual … Continued

Parent of a Child with Cortical Visual Impairment Speaks Out

As I’m out meeting with families in different parts of the country, common issues always arise in regards to children who are blind and visually impaired. So from time to time I am going to invite guest bloggers who are living these issues to express what their experiences have been. I hope that “A Parent’s … Continued