Advocating for Max, My Son Who Is Deaf-Blind

I’m Tiara, and my son’s name is Max. He has a rare genetic disorder called Chromosome 13, Partial Monosomy 13q, which is the partial deletion of the 13th chromosome that causes a combination of cognitive, sensory, and physical challenges. Our doctors initially told me not to expect Max to live. While dealing with that shocking … Continued

ParentConnect: Connecting Matters

When facing challenges, stressful life changes, and feelings of isolation, ParentConnect can be a space to support you. Support groups offer space to share concerns and successes while providing the opportunity to learn, grow, and connect with others going through similar situations. Becoming a parent has challenges that other parents can relate to, but what … Continued

Transitions: Celebrating the Diversity of Hispanic Heritage with Albinism

Kayla Ludlow loves being a Latina. She’s proud of her Hispanic heritage – her father is from Ecuador – and even though her parents split up when Kayla was young, her American-born mother made sure to teach Kayla about her heritage, including encouraging her to learn Spanish and take Latin dance classes. But people don’t … Continued

Transitions: APH Huntington: A Program to Enhance Resources and Outcomes for a Rural Area

Editor’s note: APH Huntington recognizes the barriers to accessing services for those who are blind or low vision living in rural communities. Lee Huffman, APH Huntington’s Senior Strategist of Accessible Technology and Community Outreach, shares that one of APH Huntington’s aims is to provide hands-on training, discussions, and services throughout the rural community of Huntington, … Continued

Social Skill Savvy for the First Day of School – with Bonus “About Me” Template! 

If you’re like me (a bit of a nerd at heart), you may remember your childhood school “first days” as fun and exciting, with possibly a few nervous butterflies in the mix. I loved the satisfaction of putting a crisp, clean stack of paper into my brightly colored Trapper-Keeper (did you know they’re back in … Continued

Transitions: U.S. Navy Veteran Loses Vision Yet Keeps His Career on Course  

Editor’s note: The end of July marks three related days of commemoration: Hire a Veteran Day is July 25, and both National Disability Independence Day and the 32nd anniversary of the Americans with Disabilities Act (ADA) are July 26. Read Captain Benjamin Keeley’s story to learn about his career journey after retiring from the U.S. Navy … Continued

Transitions: Celebrating Helen Keller: Her life, her achievements, and her indelible influence 

Editor’s note: Helen Keller DeafBlind Awareness Week 2022 is June 26- July 2. Parents, family members, and caregivers of children who are blind, low vision, or DeafBlind, let’s take the opportunity to look back at Helen Keller’s life and advocacy work in effort to continue carrying the mantle of empowering individuals who are blind, low … Continued

Optic Nerve Hypoplasia, Part 3: Instructional Strategies  

If your child has been diagnosed with Optic Nerve Hypoplasia (ONH), you are not alone! According to Dr. Borchert for The MAGIC Foundation, Optic nerve hypoplasia (ONH) is the leading cause of blindness in infants and children.   Joanna Mathewson recalled her young daughter’s diagnosis of ONH in Optic Nerve Hypoplasia, Part 1: Joanna and Chrissa’s … Continued

Words from the Wise: An Interview with “The Blind Cook” Christine Ha

There’s no question that Christina Ha is a remarkable, history-making woman, the only blind contestant ever and the season three winner of “MasterChef.” For Women’s History Month, we asked her to share her story as inspiration for parents and their children who are visually impaired. The key takeaway? Anything is possible if you’re determined.  FamilyConnect: … Continued