Due to Eddie’s medical needs, we typically have to travel 3-4 times a year see medical specialists. Every three months he sees a pediatric endocrinologist to monitor his medications, every year he sees his pediatric ophthalmologist to monitor his vision, and every other year he visits a pediatric neurologist to monitor his brain.
Like many of you, I never mind loading up the car and heading anywhere to get the professional opinions that I value. Eddie has seen too many doctors that I either didn’t like, or that I felt were not giving him enough credit or minutes in their day. Unfortunately, in every profession, money is tight and time is limited. In the medical field, there can never be too much time given to our children.
Last week, Eddie and I took a three-hundred-mile road trip to see his neurologist and ophthalmologist. Both professionals I feel are highly capable, and extremely knowledgeable. We were lucky enough to find a great neurologist when Eddie was four-months-old and have stuck with him. The ophthalmologist took much longer.
Eddie saw five or six eye doctors before I was impressed with anyone. We heard many times that Eddie’s vision would never improve. We heard there was nothing anyone could do. We even heard that he really didn’t need to go to an eye doctor ever again. Most people know that an annual eye exam is important for general eye health, if for nothing else.
We knew that Eddie was blind. We knew that he wasn’t going to miraculously gain vision. We just wanted somebody that was willing to give him time to mature and possibly meet his fullest vision potential. If that meant he saw complete darkness, we were fine with that. We just wanted to make sure that it was an opinion based on evidence and exams; not lack of time or interest.
From his current ophthalmologist, we learned that Eddie did have some usable vision. Not for print, but for mobility. That kid can get around an unfamiliar room without any mishaps and he’s a genius when it comes to finding an exit. We also learned that he did need glasses; however, keeping them on his face is another story. He prefers to use them as a chew-toy.
The point is, by being selective of our professionals, we have found care we rely on and opinions we can trust. Our most recent medical journey didn’t uncover new information, but did provide me with peace-of-mind that Eddie is moving forward; even if at his own pace. I knew I was again in the right medical offices with the parting words from each professional we saw.
From his ophthalmologist, “Let me know if you feel Eddie’s needs aren’t being met at school. We’re here to help if ever needed.” This isn’t something medical professionals typically say. Usually there is a line between education and healthcare. However, when you need to qualify for services, you better make sure your doctor is on your side.
From his neurologist: “You forgot to mention one of Eddie’s strengths earlier. He is absolutely adorable and endearing.” That did it for me. The trip was definitely worth the time and money. If you call my son endearing, you are definitely on Team Eddie….for life.