Our mission as the APH FamilyConnect Parent Advisory Board is to make a difference by empowering families with love, compassion, wisdom, and authenticity. â APH FamilyConnect Parent Advisory Board In October, APH FamilyConnect established the first-ever Parent Advisory Board. This group represents nine different states, various diagnoses, ages of children, many life experiences, and the … Continued
On March 5, 2019, my son Russ shocked the delivery room with a full head of bright white hair. The nurses called it “rockstar” hair! He was the cutest little dude, with folks all over the hospital stopping by to see “the baby with the white hair” that all of us blonde ladies pay the … Continued
Breaking a habit can be extremely challenging. One such habit common to children who are blind or low vision is eye pressing, poking, or rubbingâa habit that can damage the eye. HabitAware and APH have teamed up to create a device to help children with eye-poking and eye-pressing behavior. Traditionally, it has been recommended to … Continued
Editorâs note: George Stern, a college student and brilliant wordsmith who is deafblind, shares the lasting impact of contributing to his family as a child. 1: Through the Window, Softly So, what would’ve happened was: my mum, Ms. Norma, or Ms. Marie, or some other Ms. in our constellation of neighbors would’ve locked herself … Continued
Physical fitness and activities go hand in hand with self-advocacy skills and mental health. Summer is just around the corner, and there is no better time than now to prepare for summer activities with your child who is blind or low vision. Whether your summer will involve heading to the pool, playing outside at the … Continued
A memorable, accessible Easter egg hunt for your entire familyâincluding your young person who is blind or low visionâcan be in your near future. Picture your little one (white cane in tow) enthusiastically finding Easter eggs with their peersâimagine the joy, the victory, and the independence! Thatâs right, you can prepare an egg hunt where … Continued
Is your child who is blind or low vision with additional disabilities preparing for a lifetime of meaningful employment? While transition and career readiness are mandated in your childâs IEP by the age of 16, career readiness has its place in your childâs educational programming from day one of entering school. But what does career … Continued
I had a plan. Get the degree, land the job, marry the guy, build the house, and have the baby. It was a perfect plan, and I executed it flawlessly. In the year 2000, I had everything I had ever planned for. Until the curve ball. âYour son is blind.â Those four words sentenced me … Continued
Editorâs note: Originally published in TX SenseAbilities in the spring of 2022, LaQuesa Wright reflects on parenting her young adult daughter who has low vision. A Motherâs Reflections on Parenting a Child with a Visual Impairment My name is LaQuesa Wright. I am a mother of three. Demetria Ober is my 22-year-old daughter who was … Continued
There is nothing like the sound of pounding keys on a Perkins Brailler or the buzz of excitement and nervous anxiety as you wait with your friends for one of your names to be read as the winner. There is nothing like standing together to promote a cause you believe in, and there is nothing … Continued