Resources on Cortical Vision Impairment (CVI) in Children

Parents and family members of children with cortical visual impairment, or a brain-based visual processing disorder, you are far from alone. According to the Boston Childrenā€™s Hospital, cortical visual impairment (CVI) is the most common cause of permanent vision loss in children.

Yet as common as CVI is, its educational implications are often grossly misunderstood.

Advocating for Appropriate Services

Your story may be like that of Bernadette Jackel who wrote the FamilyConnect article, “Parents of a Child with Cortical Visual Impairment Speaks Out.” Ms. Jackel and her family learned about her sonā€™s diagnosis and fought diligently for her sonā€™s appropriate education; it was only after a due process hearing that Ms. Jackelā€™s son received a free and appropriate education, as is federally mandated under the Individuals with Disabilities Education Act (IDEA).

As Ms. Bernadette Jackelā€™s story exemplifies, it is imperative that parents learn the functional and educational implications of CVI. You will not only be learning strategies for your child to access the environment, tools, and information in the home, but you will also be equipped to ensure your child is receiving an appropriate education in the public-school system. Without a doubt, you are your child’s strongest advocate.

Resources on CVI

Below you will find resources to learn about CVI and its functional and educational implications:

Publications on CVI

Lastly, please join the FamilyConnect community and connect with other families who have children with CVI.