We are happy to bring you information about another telephone support group available to you. By Dr. Susan Barron, PhD and Facilitator for the Lighthouse Guild Tele-support group for Parents of Children with Autism with Blindness. Misunderstood, mislabeled, misdiagnosed. How many times since the birth of your child has this been the judgment of others … Continued
Editor’s note: We are pleased to welcome Judith Millman, LCSW, CVI telesupport group facilitator as a guest blogger today! CVI—cortical vision impairment (often called cerebral vision impairment in Europe and the British Isles) is very much in the news these days. It is the predominant cause of vision loss in children in the US and … Continued
Today we are featuring another telephone support group provided by the Lighthouse Guild’s NAPVI program. My name is Lilly Jackanin. I am the Group Facilitator for a Parent Tele-Support Group for parents of children afflicted with a condition known as Hermansky-Pudlak Syndrome. I would like to share information about our group that has been established … Continued
We need your help! FamilyConnect is currently working with an outside consulting firm to evaluate the FamilyConnect program. This is your chance to let us know how we are doing and what you would like to see from FamilyConnect in the future. Take this short survey and you will have a voice in our future … Continued
Valentine’s Day is right along the corner. Nothing could be better than to give or receive a fully accessible card in braille. This is possible but time is running out. We have several recommendations but they are time sensitive so check out our Valentine’s Day Card, Craft, and Gift Ideas for Children Who Are Blind … Continued
Editor’s note: This is the third blog entry that both informs and requests the assistance of families in answering important questions that impact all who use braille. Please help Drs. Holly Lawson and Kathryn Botsford with this effort. This is an exciting month: Louis Braille’s birthday, World Braille Day, and the United States has officially … Continued
This guest blog post was written by long-time NAPVI Regional Coordinator Jeannette Christie, who works with families in the greater New York City region. Aww, the holidays. They can be joyful and stressful all at the same time. I think back to the time when my son was little and playing with toys. I remember … Continued
Editor’s note: Lighthouse Guild and NAPVI have a number of teleconference programs and we will be posting information for them on this blog. I am excited to announce that the Lighthouse Guild will be offering a free, teleconference support group for blind and visually impaired, college bound high school seniors starting this Fall for the … Continued
October is National Disability Employment Awareness Month and we plan to give you information throughout the month on employment issues. The path to employment begins at home as well as in school and that destination may now seem far away. The promotion of skills and independence are criticalfactors in this process and begin at an … Continued
Editor’s note: This is the second blog entry that both informs and requests the assistance of families in answering important questions that impact all who use braille. Please help Holly Lawson and Kathryn Botsford with this effort. Unified English Braille (UEB) is almost here… Braille is getting a makeover. In January 2016, students, adult consumers, … Continued