I am excited to introduce you to another of the Lighthouse Guild’s telesupport program. This blog post is for those who are involved in the albinism community. By Sheila Adamo L.C.S.W., C.A.D.C. As a tenured mother of a child with albinism, I am still amazed at the range of emotions that I experience on a … Continued
We are excited to share this blog that brings to us one of the hot topics generated at the Lighthouse Guild Telephone Support group. These groups are a great way to meet other parents by phone and is a free service. To get more information or to join a group, please contact Susan LaVenture at … Continued
Here is information about one of the Lighthouse Guild’s telephone support groups. With our back-to-school focus, this support group is particularly relevant as its focus is helping visually impaired high school students with their transition into college. These telesupport groups are an excellent way to share and learn from each other. In September 2016, we … Continued
It is another hot summer day in August and we will soon be rolling out information for all of you heading back to school. Today we will Throwback Thursday to a blog written by Emily Coleman last year that was popular. Emily writes of Eddie’s becoming an Emerging Risk-Taker. We will be publishing our FamilyConnect … Continued
I am pleased to post information about a great camp located in Northern California. For many of you it is far away but it is always nice to learn what is happening accross the country. By Bill McCann Next month, I’ll once again be heading out to northern California to lead our third annual Summer … Continued
This week, we’re taking social media by storm. FamilyConnect, WonderBaby, and you will shine the light on Cerebral Visual Impairment (CVI); we’ll draw attention to what it is, discuss misconceptions, offer resources, provide encouragement to fellow parents, and share our children’s stories. Here’s how it works: Impart your knowledge, experience, and/or child’s picture pertaining to … Continued
By Kathy Yoo At first, buying gifts for a child with visual impairment can be challenging. Whether it is for your granddaughter, cousin, or niece, there are many fun and accessible gift options for blind or visually impaired children that you may have yet to discover. When choosing a toy for a child who is … Continued
We are pleased to introduce you to another Tele-Support Group and encourage you to participate as it is a great way to meet others to provide both support and information. By Sheri Stanger Time passes so quickly. One moment you’re holding your newborn baby – receiving a diagnosis that changes your world. You’re incredibly busy … Continued
With so much going on around the world and in the USA it is important to stop and recognize the good and important work that different groups are doing. The United Nations established this past Monday, June 13th, as International Albinism Awareness Day. People around the world with albinism face tremendous cultural stigma and in … Continued
Parents are vital in the lives of their children. When your child is blind it can add a complicating layer to the process. Getting it all just right is the goal all parents strive for but really, perfection can only ever be a goal, not the reality, right? Well, we asked students who are blind … Continued